Darien Library hosts a monthly family program for children with autism and other sensory integration disorders. The program is designed to meet the needs & all family members are invited (as well as siblings, OT's or PT's that would like to attend). It's a short, relaxed, open storytime followed by a sensory activity. There's also plenty of time to meet & network. Saturday mornings at 11am @ Darien Library, Darien, CT. Most children are approximately ages 3-8. For info, email Kiera Parrott kparrott@darienlibrary.org or call 203-669-5243
Wednesday, November 24, 2010
Learning to Soar Speaker Series
Social Instruction & Supporting Friendships Workshop
November 30, 2010
Social Instruction & Supporting Friendships
Wilton, CT
Dr. Michael Weiss (Professor at Fairfield Univ) addresses the social needs & core spheres of communication and social interaction for children with special needs. Learn how to evaluate your children's needs & how to develop strategies that are appropriate. Meets from 10am to 12:30pm at Wilton Library, 137 Old Ridgefield Rd, Wilton. rsvp@spednetwilton.org or 203-563-9994.
Social Instruction & Supporting Friendships
Wilton, CT
Dr. Michael Weiss (Professor at Fairfield Univ) addresses the social needs & core spheres of communication and social interaction for children with special needs. Learn how to evaluate your children's needs & how to develop strategies that are appropriate. Meets from 10am to 12:30pm at Wilton Library, 137 Old Ridgefield Rd, Wilton. rsvp@spednetwilton.org or 203-563-9994.
*
*
*
HELP! My Child Is Struggling in School! Workshop
December 15, 2010
Bridgeport, CT
Workshop for families. Meeting begins at 5:30pm with dinner. Workshop is from 6-7:30pm at John Winthrop School, 85 Eckart Street, Bridgeport, CT. Covers strategies to help children with academic or behavioral difficulties. Learn about Response to Intervention (RTI) and special education referral process. Spanish translation available. For more info, contact CPAC at 1800-445-2722 or cpac@cpacinc.org
Wednesday, October 27, 2010
CARE FOR THE CAREGIVER SUPPORT GROUP
The Norwalk Community Health Center and the CT Medical Home Initiative have a regular care giver support group. This meeting is for parents and other caregivers who want some suppport in handling the daily challenges and feelings connected with caring for a child with special needs. MaryAnn Austin, LCSW and Lisa Sheppard , Medical HOme SW Regional Cooridinator. call 203-899-1770 ex: 1202. It meets at the Norwalk Community Health Center at 120 Connecticut Avenue in Norwalk. Next meeting Thursday, October 28, 10:30-11:30.
Thursday, September 23, 2010
HEALTH CARE REFORM
From Brazelton Touchpoints Center:
Six months ago, President Obama signed the Affordable Care Act. On September 23rd, 2010 several important reforms will become law, expanding coverage to millions of children who previously fell through the cracks of our health care system. We recognize this day as a historic milestone in the continuiong flight to ensure quality health care for all Americans.
Benefits:
*Children under 19 can no longer be rejected from health care plans due to pre-existing conditions. New plans cannot exclude anyone from coverage for a pre-existing condition.
*Young adults can stay on their parents' health plan until age 26.
*Insurers can no longer limit the amount of coverage someone can receive over their lifetime.
*Insurers can no longer take coverage away from children when they get sick.
For more informatin visit: www.healthcare.gov
Six months ago, President Obama signed the Affordable Care Act. On September 23rd, 2010 several important reforms will become law, expanding coverage to millions of children who previously fell through the cracks of our health care system. We recognize this day as a historic milestone in the continuiong flight to ensure quality health care for all Americans.
Benefits:
*Children under 19 can no longer be rejected from health care plans due to pre-existing conditions. New plans cannot exclude anyone from coverage for a pre-existing condition.
*Young adults can stay on their parents' health plan until age 26.
*Insurers can no longer limit the amount of coverage someone can receive over their lifetime.
*Insurers can no longer take coverage away from children when they get sick.
For more informatin visit: www.healthcare.gov
Tuesday, July 13, 2010
THE ARC OF CONNECTICUT HERALDS AGREEMENT IN DECADES-OLD SOUTHBURY TRAINING SCHOOL CASE
July 13, 2010, Hartford, CT— The Arc of Connecticut has announced that a negotiated settlement agreement has been reached in Messier v. Southbury Training School, a class action lawsuit that sought decent care and community placement for the approximately 600 residents of the institution in 1998. Senior U.S. District Judge Ellen Bree Burns, U.S. District Court House, 141 Church Street, New Haven, CT, presided over the trial that began in January 1999.
The Arc of Connecticut Executive Director Lynn C. Warner called the action “a momentous occasion for the residents of Southbury Training School. With this agreement in place, the focus is now rightly on opportunities and solutions rather than roadblocks and litigation.” Speaking on behalf of the state association, its board of directors, 23 local chapters, the individuals for whom they advocate and their families, she said, “We are relieved with the long-awaited, favorable outcome.”
The settlement agreement, which was signed by Judge Burns, assures that the Department of Developmental Services and its staff are committed to insuring that each class member has the opportunity to have an assessment of the supports that would be needed to live successfully in a community setting and that the class member and his/her guardian have sufficient information to make an informed decision about the merits of community placement to meet the particular needs of the individual class member.
Diane Aubin, The Arc of Connecticut board president, indicated that the association has long believed that the individuals at Southbury and their families were not given the choice of community options. “The board commends all those who worked so diligently to come to this accord. We look forward to working with DDS to implement the court-approved remedies in a timely and sensitive manner.”
BACKGROUND OF THE CASE
The much-publicized case was tried to conclusion for 123 days between January and October 1999. On June 4, 2008, Senior U.S. District Judge Ellen Bree Burns issued a 113-page Memorandum of Decision and Order, ruling that the plaintiffs (the Southbury Training School residents and The Arc of Connecticut, WeCAHR, and People First) established that the Department of Developmental Services had violated the statutory and constitutional rights of the residents. Further, the judge characterized Southbury as a segregated institution. She also held that the State of Connecticut failed to make independent professional judgments as to whether each resident could benefit from leaving the institution and failed to make community placements available for those who expressed the desire to leave the institution.
KEY POINTS ADDRESSED IN THE SETTLEMENT AGREEMENT
• The Role of Independent Expert
A mutually agreed upon independent expert will be retained [by the department] to help develop and oversee the implementation of staff education and information sharing with guardians, family members and class members about the range of services and supports that are available in the community. The expert will work or oversee work done individually with the teams including guardians to broaden everyone’s understanding of the community system. The agreement describes in detail the role and responsibilities of the expert.
• Implementation and Monitoring of Informed Decision-making
The foundation of this settlement agreement is that guardians, class members and family members have sufficient information to make an informed choice about residential placement and that team members are sufficiently trained to render professional judgment regarding the least restrictive setting in which the class members can be served.
DDS commits itself to taking actions and putting processes in place to make sure that guardians, family members and class members have sufficient information about community options to make an informed choice about team members’ recommendations for the most integrated setting to meet the individual’s needs. Community placement shall be considered individually for each class member and pursued, if in the professional judgment of the team and with the agreement of the class member’s guardian, it is considered the most appropriate setting for the individual.
The agreement clearly outlines methods that will be employed to assure that this information is available and key indicators that the agreement has been fully implemented.
• Funding Sources
Whereas DDS used to have a separate fund for STS class members to access to finance their community placement, the department has developed portability policy and procedures that apply to all class members and allow anyone in the DDS system to utilize their resources to receive supports and services in another location and from another provider or through hiring their own staff.
DDS commits that both the first years’ costs and the ongoing annualization of the cost of the community placement for a class member will continue to be made available throughout the 7-8 years this settlement agreement covers.
• Projected Timeline for Full Implementation
During the implementation phase, it is expected that all the class members at Southbury Training School will have the opportunity to have an assessment of the supports that would be needed to live successfully in a community setting, to assure that the class member, guardian, involved family member, or other personal representative, has sufficient information to make an informed decision about the merits of community placement to meet the particular needs of the class member. At the end of this timeframe, it is expected that all class members who expressed a desire to move from Southbury Training School have done so in a timely, well-informed manner. The oversight of this Agreement will continue until the expert is satisfied that the benchmarks outlined within the Settlement Agreement have been successfully met by DDS and then will be certified by the Court as completed.
• Implications for Case Members
Lynn Warner, Executive Director of The Arc of Connecticut, said at the signing of this settlement agreement, “We went to court to get assurance that all of the class members and guardians, from this day on, will be fully informed of the benefits of living within the community and that those individuals who have wanted to live in the community or have recently made that decision are given that opportunity in a smooth, supported and thoroughly planned transition.”
Further, Warner pointed out that, in recent years, communities throughout Connecticut have developed increased capacity to provide services and supports to individuals with intellectual disabilities and related developmental disabilities. As an example, she cited the former residents of Mansfield Training School who successfully transitioned to lives in the community when the facility was closed in 1993.
ABOUT THE ARC OF CONNECTICUT
The Arc of Connecticut is committed to protecting the rights of people with intellectual disabilities and related developmental disabilities and to promoting opportunities for their full inclusion in the life of their own home communities. In all matters, The Arc of Connecticut advocates for informed choice, which involves making evidence of current best practice, viable options presented in a manner that is understandable to each individual, and effectively addressing concerns of the individual and/or their family members in a timely manner. The state organization, through its local chapters provides supports and services to approximately 2700 individuals and their family members around the state.
The Arc of Connecticut is located at 43 Woodland Street, Hartford, CT 06105.
FOR COMMENT, CONTACT
Lynn Warner, Executive Director, The Arc of Connecticut,
860.246.6400 (W), 860.559.0819 (Cell)
The Arc of Connecticut Executive Director Lynn C. Warner called the action “a momentous occasion for the residents of Southbury Training School. With this agreement in place, the focus is now rightly on opportunities and solutions rather than roadblocks and litigation.” Speaking on behalf of the state association, its board of directors, 23 local chapters, the individuals for whom they advocate and their families, she said, “We are relieved with the long-awaited, favorable outcome.”
The settlement agreement, which was signed by Judge Burns, assures that the Department of Developmental Services and its staff are committed to insuring that each class member has the opportunity to have an assessment of the supports that would be needed to live successfully in a community setting and that the class member and his/her guardian have sufficient information to make an informed decision about the merits of community placement to meet the particular needs of the individual class member.
Diane Aubin, The Arc of Connecticut board president, indicated that the association has long believed that the individuals at Southbury and their families were not given the choice of community options. “The board commends all those who worked so diligently to come to this accord. We look forward to working with DDS to implement the court-approved remedies in a timely and sensitive manner.”
BACKGROUND OF THE CASE
The much-publicized case was tried to conclusion for 123 days between January and October 1999. On June 4, 2008, Senior U.S. District Judge Ellen Bree Burns issued a 113-page Memorandum of Decision and Order, ruling that the plaintiffs (the Southbury Training School residents and The Arc of Connecticut, WeCAHR, and People First) established that the Department of Developmental Services had violated the statutory and constitutional rights of the residents. Further, the judge characterized Southbury as a segregated institution. She also held that the State of Connecticut failed to make independent professional judgments as to whether each resident could benefit from leaving the institution and failed to make community placements available for those who expressed the desire to leave the institution.
KEY POINTS ADDRESSED IN THE SETTLEMENT AGREEMENT
• The Role of Independent Expert
A mutually agreed upon independent expert will be retained [by the department] to help develop and oversee the implementation of staff education and information sharing with guardians, family members and class members about the range of services and supports that are available in the community. The expert will work or oversee work done individually with the teams including guardians to broaden everyone’s understanding of the community system. The agreement describes in detail the role and responsibilities of the expert.
• Implementation and Monitoring of Informed Decision-making
The foundation of this settlement agreement is that guardians, class members and family members have sufficient information to make an informed choice about residential placement and that team members are sufficiently trained to render professional judgment regarding the least restrictive setting in which the class members can be served.
DDS commits itself to taking actions and putting processes in place to make sure that guardians, family members and class members have sufficient information about community options to make an informed choice about team members’ recommendations for the most integrated setting to meet the individual’s needs. Community placement shall be considered individually for each class member and pursued, if in the professional judgment of the team and with the agreement of the class member’s guardian, it is considered the most appropriate setting for the individual.
The agreement clearly outlines methods that will be employed to assure that this information is available and key indicators that the agreement has been fully implemented.
• Funding Sources
Whereas DDS used to have a separate fund for STS class members to access to finance their community placement, the department has developed portability policy and procedures that apply to all class members and allow anyone in the DDS system to utilize their resources to receive supports and services in another location and from another provider or through hiring their own staff.
DDS commits that both the first years’ costs and the ongoing annualization of the cost of the community placement for a class member will continue to be made available throughout the 7-8 years this settlement agreement covers.
• Projected Timeline for Full Implementation
During the implementation phase, it is expected that all the class members at Southbury Training School will have the opportunity to have an assessment of the supports that would be needed to live successfully in a community setting, to assure that the class member, guardian, involved family member, or other personal representative, has sufficient information to make an informed decision about the merits of community placement to meet the particular needs of the class member. At the end of this timeframe, it is expected that all class members who expressed a desire to move from Southbury Training School have done so in a timely, well-informed manner. The oversight of this Agreement will continue until the expert is satisfied that the benchmarks outlined within the Settlement Agreement have been successfully met by DDS and then will be certified by the Court as completed.
• Implications for Case Members
Lynn Warner, Executive Director of The Arc of Connecticut, said at the signing of this settlement agreement, “We went to court to get assurance that all of the class members and guardians, from this day on, will be fully informed of the benefits of living within the community and that those individuals who have wanted to live in the community or have recently made that decision are given that opportunity in a smooth, supported and thoroughly planned transition.”
Further, Warner pointed out that, in recent years, communities throughout Connecticut have developed increased capacity to provide services and supports to individuals with intellectual disabilities and related developmental disabilities. As an example, she cited the former residents of Mansfield Training School who successfully transitioned to lives in the community when the facility was closed in 1993.
ABOUT THE ARC OF CONNECTICUT
The Arc of Connecticut is committed to protecting the rights of people with intellectual disabilities and related developmental disabilities and to promoting opportunities for their full inclusion in the life of their own home communities. In all matters, The Arc of Connecticut advocates for informed choice, which involves making evidence of current best practice, viable options presented in a manner that is understandable to each individual, and effectively addressing concerns of the individual and/or their family members in a timely manner. The state organization, through its local chapters provides supports and services to approximately 2700 individuals and their family members around the state.
The Arc of Connecticut is located at 43 Woodland Street, Hartford, CT 06105.
FOR COMMENT, CONTACT
Lynn Warner, Executive Director, The Arc of Connecticut,
860.246.6400 (W), 860.559.0819 (Cell)
Tuesday, July 6, 2010
Seussical (the Musical) Performance for Special Needs Community!
Friday, June 4, 2010
Count Up to Kindergarten!
A new early learning playgroup for 4-year-olds* living in Norwalk
Tuesday mornings
11:15 a.m. - 12:15 p.m.
Family Resource Center at Fox Run School
The group is free and open to any Norwalk 4-year-old and an accompanying parent, grandparent, nanny or babysitter. Activities are focused on building social skills, pre-reading, early math, music and art activities.
Call 899-2326 for more information
*Priority will be given to children reaching their 4th birthday by Jan 1, 2010
Funded by the Norwalk Early Childhood Council Quality Enhancement Initiative
Tuesday, May 4, 2010
HAPPY MOTHER"S DAY
To All THE MOTHERS LIKE MINE
A long time ago, as the story goes
A child was born with ten fingers and ten toes
Two arms, two legs, eyes, ears, mouth, and a nose.
And the mother loved her....
The Professionals said wait, something is not right.
Your child is different and quite a sight....
One leg longer than the other and clubfeet.
Facial paralysis. Yes, your child's incomplete!
But the mother loved her...
She is nothing more than a blob, they did say.
Can't walk, can't talk, she is in the mentally impaired way.
Yet the mother still loved her...
Years have gone by and you should see!
The result of my mother's belief in me.
I have two legs and two feet that can walk.
And a mouth that can talk, talk, talk.
Two eyes that can intellectually see,
and allow me to earn more than one degree.
Because my mother loved me..
To all the mothers like mine.
Thank you for following your heart and believing in the possiblities....
Reprinted from National Parent Network on Disabilities
npnd@cs.net
A long time ago, as the story goes
A child was born with ten fingers and ten toes
Two arms, two legs, eyes, ears, mouth, and a nose.
And the mother loved her....
The Professionals said wait, something is not right.
Your child is different and quite a sight....
One leg longer than the other and clubfeet.
Facial paralysis. Yes, your child's incomplete!
But the mother loved her...
She is nothing more than a blob, they did say.
Can't walk, can't talk, she is in the mentally impaired way.
Yet the mother still loved her...
Years have gone by and you should see!
The result of my mother's belief in me.
I have two legs and two feet that can walk.
And a mouth that can talk, talk, talk.
Two eyes that can intellectually see,
and allow me to earn more than one degree.
Because my mother loved me..
To all the mothers like mine.
Thank you for following your heart and believing in the possiblities....
Reprinted from National Parent Network on Disabilities
npnd@cs.net
Thursday, January 14, 2010
Fantastic Workshop for Siblings of Children With Developmental Disabilities
An amazing, nationally-recognized workshop is available to STAR Rubino families!
Brothers and Sisters of People with Special Needs:
Too Important to Ignore!
With the exception of mothers, siblings spend more time with children who have special needs than any other family member. And, because the sibling relationship is the longest-lasting relationship in the family, brothers and sisters experience concerns about the relationship throughout their lives.
SIBSHOPS are "pedal-to-the-metal" celebrations of the special relationship between brothers and sisters of kids with special needs. SIBSHOPS acknowledge that being a brother or sister of a person with special needs is for some a good thing, others a not-so-good thing, and for many, somewhere in between.
SIBSHOPS are available to parents, siblings and professionals to learn aobut sibling relationships and/or learn how to run their own SIBSHOPS.
The following are sibling "SIBSHOPS" scheduled this year:
SIBSHOPS will be held March 11 at & May 6
Participants must be between 8-13 years of age and have a brother or sister with special needs
Times: 5:30-8:00 pm
Where: 182 Wolfpit Ave., Norwalk, CT 06851
Cost: $35.00 per session ($50.00 per session for 2 sibs)
Contact STAR, Linda Snell for information: 203-354-0142
Here is what kids say about Sibshops:
"At SIBSHOPS you get to meet other brothers and sisters of kids with special needs."
"SIBSHOPS have outrageous games"
"At SIBSHOPS you can talk about the good and not-so-good parts of having a brother or sister with special needs."
Monday, January 11, 2010
Choosing the Perfect Car Seat to Keep Your Child Safe
"There's no right or wrong way to choose a car seat," says AAA Public Affairs' Frank Mayko to parents looking for the perfect car seat for their newborn or the first forward-facing car seat for bigger babies.
"You have to research car seats and once your homework is done, the best car seat is the one that fits your child, fits your car, and fits your pocketbook."
Infants
Not only does the American Academy of Pediatrics recommend all infants ride rear-facing starting with their first ride home, but in Connecticut the law requires babies ride rear-facing up to 1 year and 20 pounds.
There are two types of rear-facing car-safety seats: infant-only and convertible seats.
Ms. Mayko recommends infant-only seats, which are small and have carrying handles. Many come with a base that can be left in the car. Ms. Mayko says these fit the child perfectly, are convenient because they are easier to handle and have different weights.
Convertible seats can be converted from rear-facing to forward-facing as children get older. While these seats can be used longer, they are bulker and don't have carrying handles or a separate base.
Forward-Facing Seats
Once your child has reached the highest weight or height allowed by rear-facing seat manufacturers, the child can ride forward-facing in a convertible seat. However, its best for him or her to ride rear-facing as long as possible.
While Connecticut state law permits children to move to a forward-facing seat position after one year and 20 pounds, this is the minimum requirement and Ms. Mayko recommends keeping the children rear-facing longer, if possible.
She comments, "If you saw the crash-dynamic videos and realized how it affects the human body--let alone an infant before the spinal cord and neck have developed, you yourself would want to ride rear-facing!"
Several types of car-safety seats can be used forward-facing:
-Convertible seats: convert from rear-facing to forward-facing seats.
-Forward-Facing toddler seats: can be used forward-facing with a harness for children who weigh 40 to 65 pounds or without the harness, as a booster--up to 80 or 120 pounds.
-Combination Forward-Facing booster seats: can be used forward-facing with a harness for children 40 to 65 pounds or without the harness as a booster, 80 to 120 pounds.
-Integrated child-safety seats: forward-facing seats are built-in some vehicles such as Mercedes and BMWs. Weight and height limits vary.
Mayko says, "The ability to change a baby to forward-facing all depends on the seat requirements, and each seat is different. When the toodler is the appropriate weight and height, parents can turn them forward-facing."
From the Child Passenger Safety column of AAA Connecticut Newsletter, January 2010
Subscribe to:
Posts (Atom)